Updates

So today Tim had a Dr visit/checkup…all is great and he is doing amazing…next visit is 4 months and that will put him at 1 year!!!! Can’t believe how fast it’s gone!!

Also we just had an awesome vacation to the north coast, Fort Bragg and Ferndale and I’ve added a few pictures

Vacation is near

We are taking a real vacation….haven’t done that since before Tim started Dialysis which is now close to 2 years….we are leaving on September 11th and going for a week along the northern coast of California….we will post pictures later, thank you for following our story…..we will also be doing the PKD Foundation annual walk in Sacramento on September 29th. see the link on the previous post to make donations to the foundation.

https://pkdfoundation.salsalabs.org/2019walkforpkd-sacramento/p/timedsell

This link if for a fundraiser that is very near and dear to our hearts….we walk every year for the PKD Foundation….we continue to pray for a cure…our walk is in Sacramento on Sunday September 29th…we have one of our children that has been tested and does not have PKD and 2 more that have not yet been tested….the testing is expensive so they will have it done as they can. We would appreciate anyone who can to go to this link on Tim’s account and make any donation that you can or even come and walk with us. Thank you for all your support thru the process of Tim’s surgery and recovery……we will continue to support this foundation as long as there is a cure waiting to be found. If you highlight the link and then left click on the mouse you can choose to go to the link.

All looking good

Drs wanted Tim’s Creatinine to be between 1.4 and 1.5, normal is up to 1.33, this is now the lowest that his Creatinine has been. Some of his meds were recently reduced which has helped the level to go down. Tim is feeling great and we feel so blessed.

9 weeks and counting

So…first getaway since surgery….since it was my (Julie) birthday, we headed to Murphy’s for the weekend….just getting away and spending time together is awesome….we drove over to Black Oak Casino and checked it out and had lunch there….Tim is selling his Jeep and we replaced it with his dream car….it’s a 2015 Challenger…..can’t afford the classic one, so we went with the new version, we love it!! Then we came home on Sunday which was my actual birthday, and our kids fixed us an awesome dinner and we all went into our silo on the ranch and did a little Sunday Gunday therapy….had fun shooting some cans of shaving cream…..Tim and I love having our family with us as much as possible……thank you all for following Tim’s progress….he has been building a deck on the back of our house and doing plenty of yard work…..you just can’t stop this guy….LOL…..he went back to work at 6 weeks, which keeps his busy too. Below are pics of our grandkids…..Jett who as you can see loves his little sister is 4 1/2 and Peyton just turned one on March 26th, and thats their beautiful mama, our oldest daughter Ashley. This is just a portion of our amazing family.

7 weeks post transplant

CPMC ….7 weeks…all is well
Selfie from top of parking garage at CPMC
Tim wanted to do a Dirty Harry jump in the streets of San Francisco
Picnic in the car with a beautiful view thanks for the tip Bob Tigert
Alcatraz
Waves crashing on rocks
Priceless!!! My love
Our day together
Getting out of the city and back to the country where we belong

So…Dr said everything looks great…they’ll do an ultrasound just to take a look and then we can go to their satellite office in Modesto next time…thank goodness, cause we aren’t SF people…what a grueling day of driving in traffic…left home at 7:30am and back in Lodi at 5pm…from parking to appt and back we were only there an hour and 15 minutes…then our lunch stop..the rest was in the 🚘….😳

How to leave a comment

So I’ve had people tell me they’re not sure how to comment on a post, so I found that if you scroll to where it lists all the titles of my posts, you click on one and that is where it will let you make a comment, then I will get a notice to approve it. I’d love to hear your feedback on my blog…of course if I don’t like it, I won’t approve it….LOL…just kidding, if there’s any info you’d like to see please let me know. Tomorrow we go back to SF for another follow up, so I’ll update again after that

Good News!!!

Favorite Family Pic 2012
Good Times 2009

So…our children have a 50/50 chance of having PKD…we just found out that Cody DOES NOT have PKD!!!!! He just recently got tested and was cleared…..the girls have not yet been tested…when the Dr. told Cody he should be checked, they scheduled his ultrasound and let him know that his portion was $480…”affordable healthcare” at it’s best!! Anyway he went ahead and did it so that he would know. We are so excited for this good news and will hope the best for both of our girls. These are my people and my world!!! Cody has found an awesome young lady who has stolen his heart and we couldn’t be happier!! Things are going his way!! WHOOP WHOOP!!!